Special Ed


My kids are unique.  Often times I really love that they are so unique.  No one has a giggle like Taylor, and no one has a smile like Wes.  No one is as kind, thoughtful, and loving as Alivya.  An no one can ham up a photo like Ava!  Ok, well I might be a little biased. 

Our kids get a lot of attention because they are twins, not just a pair of twins, but two pairs of twins.  They get attention because each pair consists of a boy and a girl.  They get a lot of attention because all four were born very early; 14 and 11 weeks early.  They get a lot of attention because two have autism and the other two have asthma.  

Some of this attention is good, very positive... some, well, very negative.  I have written a lot about IEPs over the years... Taylor has had 5 and Wes 3... but, for some reason, this year has taken its toll. 

I am so utterly disappointed by this system that I can't find the words to explain myself.  Just like this year, I have no idea how we will get through next year, but some how, I know we will... and I won't have to compromise what I know to be right for any of my children in order to do it. 


Happy Nurses Appreciation Week

Taylor, Alivya, and Sue RN

Is it fitting that I began my nursing career at the beginning of nursing appreciation week?

Taylor and Alivya and Sue RN (2007)
These photos are of Sue, who Taylor and Alivya's primary nurse coordinator while they were in the NICU.  Sue guided us on our first visit as parents.  She taught us how to change their tiny diapers, bath their itty bitty bods, touch them without stressing them, assess them when the machines beeped, and so, so much more.  While I had nursing training already before we met Sue, it was during that time that it all started to click, even if I didn't know it then. Sue played a huge part in why Taylor and Liv are here with us today, and she was a huge player in making me the nurse I am today. 

Westli and Sue RN (2010)
Today I appreciate all of the Sue RNs who cared for all four of my babies.  I thank those that care for tiny miracles today.  Obviously, I appreciate all the different disciplines of nurses, but the NICU nurses really do have a special place in my heart.